Morecambe Bay Pulmonary Fibrosis Support Group is a registered charity (No 1198516) set up by the family of Diana Jones with members of the Interstitial Lung Disease team in the Morecambe Bay area. Our priority is to provide support for anyone diagnosed with pulmonary fibrosis and anyone affected by their loved one’s diagnosis.
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Our friendly group meet in person every month and it is free for all attendees, however frequent. At present we meet at Burton Memorial Hall, Carnforth (LA6 1NA) and Morrisons Community Room in Barrow (LA14 2HF) and refreshments are provided. We sometimes invite speakers who can provide useful and/or interesting information and of course there is plenty of time to talk to each other.
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For further information about meetings, please do not hesitate to use the contact form or phone Wendy on 07500 660 648
Please also contact us if you want to get involved with helping at the group or fundraising.
Diana's Story:
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Diana lived near Morecambe for over 40 years. Throughout her life her passion was for gardening and craftwork. Every single moment to spare she would spend flower-arranging and creating wonderful designs that earned her many awards, which she continued to do up until a month before her death from idiopathic pulmonary fibrosis, dying just 20 months after her diagnosis. She left behind two children, Wendy & Martin, and her grandson Ben.
From 2007, she had made preparations so that her body could be bequeathed to Liverpool Medical school so that future medics could learn from her even after her death. As a Nightingale nurse earlier in her life, to give back to the medical world in this way was greatly important to her. Her family wanted to recognise this wonderful gift and use their lived experience to help and support others who are affected by this disease.
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Pulmonary fibrosis is a lung disease which most people have not heard of until a diagnosis affects them and their loved ones. People can often feel very isolated and understanding of the condition isn't as broad as it should be, not least in regard to how it can affect day to day life. Support from other people who understand is invaluable.
